CDE Detailed Report
Disease: Sickle Cell Disease
Sub-Domain: Additional Proposed Instruments
CRF: PROMIS Item Bank v1.0 - Sleep Related Impairment
Sub-Domain: Additional Proposed Instruments
CRF: PROMIS Item Bank v1.0 - Sleep Related Impairment
16 results.
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Additional Notes (Question Text) | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guideline) | Sub Domain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | Source | Form Set | Form | Field | Domain | CDASH Variable | CDASH Definition | CDASH Label | Controlled Terminology | Prompt | Essentiality | Question Text | CDASH imp guidance | SDTM IG target | csDSR | PhenX | Data Type | CRF Completion Inst | SDTMIG Target Var | SDTMIG Target Map | Codelist Name | PVs | Pre Pop Value | Query Display | List Style |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C20846 | Patient-Reported Outcome Measurement Information System (PROMIS) - Concentration difficulty poor sleep past week scale | PROMISTrblCncntratPoorSlpScale | The scale which represents how often the participant had a hard time concentrating because of poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents how often the participant had a hard time concentrating because of poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I had a hard time concentrating because of poor sleep. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Sleep Related Impairment Sleep31 | Adult;Pediatric | Proposed | 1.00 | 2015-05-21 09:54:31.0 | PROMIS Item Bank v1.0 - Sleep Related Impairment | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20847 | Patient-Reported Outcome Measurement Information System (PROMIS) - Daytime activity difficulty poor sleep past week scale | PROMISDayActDstrbPoorSlpScale | The scale which represents how often the participant's daytime activities were disturbed by poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents how often the participant's daytime activities were disturbed by poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days my daytime activities were disturbed by poor sleep. | 5;4;3;2;1 | Always;Often;Sometimes;Rarely;Never | Numeric Values | "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Sleep Related Impairment Sleep33 | Adult;Pediatric | Proposed | 1.00 | 2015-05-21 09:54:31.0 | PROMIS Item Bank v1.0 - Sleep Related Impairment | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20837 | Patient-Reported Outcome Measurement Information System (PROMIS) - Sleepiness hinder task assessment past week scale | PROMISHardDoThingsSleepyScale | The scale which represents how often the participant had a hard time getting things done because he/she was sleepy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents how often the participant had a hard time getting things done because he/she was sleepy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I had a hard time getting things done because I was sleepy. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Sleep Related Impairment Sleep11 | Adult;Pediatric | Proposed | 1.00 | 2015-05-21 09:54:31.0 | PROMIS Item Bank v1.0 - Sleep Related Impairment | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20848 | Patient-Reported Outcome Measurement Information System (PROMIS) - Irritability poor sleep past week scale | PROMISFeltIrritablPoorSlpScale | The scale which represents how often the participant felt irritable because of poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents how often the participant felt irritable because of poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I felt irritable because of poor sleep. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Sleep Related Impairment Sleep35 | Adult;Pediatric | Proposed | 1.00 | 2015-05-21 09:54:31.0 | PROMIS Item Bank v1.0 - Sleep Related Impairment | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20838 | Patient-Reported Outcome Measurement Information System (PROMIS) - Sleepiness concentration difficulty past week scale | PROMISHardConcntratSleepyScale | The scale which represents how often the participant had a hard time concentrating because he/she was sleepy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents how often the participant had a hard time concentrating because he/she was sleepy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I had a hard time concentrating because I was sleepy. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Sleep Related Impairment Sleep14 | Adult;Pediatric | Proposed | 1.00 | 2015-05-21 09:54:31.0 | PROMIS Item Bank v1.0 - Sleep Related Impairment | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20849 | Patient-Reported Outcome Measurement Information System (PROMIS) - Emotional control difficulty poor sleep past week scale | PROMISHrdCntrlEmoPoorSlpScale | The scale which represents how often the participant had a hard time controlling his emotions because of poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents how often the participant had a hard time controlling his emotions because of poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I had a hard time controlling my emotions because of poor sleep. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Sleep Related Impairment Sleep38 | Adult;Pediatric | Proposed | 1.00 | 2015-05-21 09:54:31.0 | PROMIS Item Bank v1.0 - Sleep Related Impairment | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20839 | Patient-Reported Outcome Measurement Information System (PROMIS) - Awaken alert past week scale | PROMISAlertWhenWakeUpScale | The scale which represents how often the participant felt alert when he/she woke up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents how often the participant felt alert when he/she woke up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I felt alert when I woke up. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Sleep Related Impairment Sleep16 | Adult;Pediatric | Proposed | 1.00 | 2015-05-21 09:54:31.0 | PROMIS Item Bank v1.0 - Sleep Related Impairment | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20850 | Patient-Reported Outcome Measurement Information System (PROMIS) - Energy sufficient past week scale | PROMISHadEnoughEnergyScale | The scale which represents how often the participant had enough energy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents how often the participant had enough energy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I had enough energy. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Sleep Related Impairment Sleep40 | Adult;Pediatric | Proposed | 1.00 | 2015-05-21 09:54:31.0 | PROMIS Item Bank v1.0 - Sleep Related Impairment | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20840 | Patient-Reported Outcome Measurement Information System (PROMIS) - Awaken ready start day past week scale | PROMISReadyToStartDayScale | The scale which represents the extent to which the participant felt ready to start the day upon waking up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents the extent to which the participant felt ready to start the day upon waking up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days when I woke up I felt ready to start the day. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Sleep Related Impairment Sleep19 | Adult;Pediatric | Proposed | 1.00 | 2015-05-21 09:54:31.0 | PROMIS Item Bank v1.0 - Sleep Related Impairment | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20851 | Patient-Reported Outcome Measurement Information System (PROMIS) - Sleepy during daytime past week scale | PROMISSleepyDuringDaytimeScale | The scale which represents how often the participant was sleepy during the daytime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents how often the participant was sleepy during the daytime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I was sleepy during the daytime. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Sleep Related Impairment Sleep42 | Adult;Pediatric | Proposed | 1.00 | 2015-05-21 09:54:31.0 | PROMIS Item Bank v1.0 - Sleep Related Impairment | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20841 | Patient-Reported Outcome Measurement Information System (PROMIS) - Awaken difficulty past week scale | PROMISDifficultyWakingUpScale | The scale which represents how often the participant had difficulty waking up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents how often the participant had difficulty waking up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I had difficulty waking up. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Sleep Related Impairment Sleep47 | Adult;Pediatric | Proposed | 1.00 | 2015-05-21 09:54:31.0 | PROMIS Item Bank v1.0 - Sleep Related Impairment | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20852 | Patient-Reported Outcome Measurement Information System (PROMIS) - Trouble stay awake during day past week scale | PROMISTrblStayAwakeInDayScale | The scale which represents how often the participant had trouble staying awake during the day in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents how often the participant had trouble staying awake during the day in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I had trouble staying awake during the day. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Sleep Related Impairment Sleep44 | Adult;Pediatric | Proposed | 1.00 | 2015-05-21 09:54:31.0 | PROMIS Item Bank v1.0 - Sleep Related Impairment | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20842 | Patient-Reported Outcome Measurement Information System (PROMIS) - Awaken sleepy past week scale | PROMISStillSleepyWhenWakeScale | The scale which represents how often the participant still felt sleepy when he/she woke up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents how often the participant still felt sleepy when he/she woke up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I still felt sleepy when I woke up. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Sleep Related Impairment Sleep24 | Adult;Pediatric | Proposed | 1.00 | 2015-05-21 09:54:31.0 | PROMIS Item Bank v1.0 - Sleep Related Impairment | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20843 | Patient-Reported Outcome Measurement Information System (PROMIS) - Tired assessment past week scale | PROMISFeltTiredScale | The scale which represents how often the participant felt tired in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents how often the participant felt tired in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I felt tired. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Sleep Related Impairment Sleep21 | Adult;Pediatric | Proposed | 1.00 | 2015-05-21 09:54:31.0 | PROMIS Item Bank v1.0 - Sleep Related Impairment | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20844 | Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep every opportunity past week scale | PROMISSleepWheneverCouldscale | The scale which represents how often the participant tried to sleep whenever he/she could in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents how often the participant tried to sleep whenever he/she could in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I tried to sleep whenever I could. | 5;4;3;2;1 | Always;Often;Sometimes;Rarely;Never | Numeric Values | "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Sleep Related Impairment Sleep27 | Adult;Pediatric | Proposed | 1.00 | 2015-05-21 09:54:31.0 | PROMIS Item Bank v1.0 - Sleep Related Impairment | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20845 | Patient-Reported Outcome Measurement Information System (PROMIS) - Day problem poor sleep past week scale | PROMISDayProblemPoorSleepScale | The scale which represents how often the participant had problems during the day because of poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents how often the participant had problems during the day because of poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I had problems during the day because of poor sleep. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | "Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Sleep Related Impairment Sleep29 | Adult;Pediatric | Proposed | 1.00 | 2015-05-21 09:54:31.0 | PROMIS Item Bank v1.0 - Sleep Related Impairment | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
16 results.