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CRF Library
Overview
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CRF Library
View and download available CureSCi CRFs using filters below. For best results, clear form between searches.
Disease
- Any -
Sickle Cell Disease
Sub-Disease
- Any -
Sickle Cell Disease
Domain
- Any -
Additional Proposed Instruments
Assessments and Examinations
Disease or Treatment Related Events
NIH Resources
Outcomes and End Points
Overview of Working Group Recommendations
Participant Characteristics
Safety Data
Treatment/Intervention Data
Sub-Domain
- Any -
Adverse Events/Toxicities
Anemia
Anxiety
Asthma
Caregiver Burden
Clinical Event End Points
Coping Skills/Pain Coping
Daytime Sleepiness
Demographics
Drugs
Emotional Impact of SCD
Executive Function
Executive Functioning and Attention
Fatigue
Fertility and Bone
General Function
General Health History
Genetics/Assays
Global Cognition
Global Health/Quality of Life
Imaging Diagnostics
Laboratory Tests and Biospecimens/Biomarkers
Life Satisfaction
Low Mood
Lung
Mortality/Survival
NIH Resources
Negative Affect: Mixed
Non-Imaging Diagnostics
Other
PROMIS
Pain
Pain Impact/Interference
Pain Intensity
Pain Mechanism
Pain: Mixed
Painful Crises
Patient Reported Outcomes Summary
Phen-X
Physical Examinations
Physical Function
Priapism
Processing Speed
Renal
Sleep Disturbance
Sleep Impact/Sleep Disturbance
Social Function
Social History
Spleen
Stigma
Therapies
Vital Signs and Other Body Measures
Working Group Summaries
Working Memory
Copyright
- Any -
False
True
Keyword
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Operations
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Download results by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CRFs listed on the first page. Then choose 'Download Table Contents into Zip File' from the Choose an operation dropdown menu.
CRF Module/Guideline
Description
CDEs
Version #
Version Date
Disease Name
Sub Disease Name
Copyright
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