CDE Detailed Report
Disease: Sickle Cell Disease
Sub-Domain: Additional Proposed Instruments
CRF: PhenX Toolkit: Quality of Care - Children
Sub-Domain: Additional Proposed Instruments
CRF: PhenX Toolkit: Quality of Care - Children
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Additional Notes (Question Text) | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guideline) | Sub Domain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | Source | Form Set | Form | Field | Domain | CDASH Variable | CDASH Definition | CDASH Label | Controlled Terminology | Prompt | Essentiality | Question Text | CDASH imp guidance | SDTM IG target | csDSR | PhenX | Data Type | CRF Completion Inst | SDTMIG Target Var | SDTMIG Target Map | Codelist Name | PVs | Pre Pop Value | Query Display | List Style |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C59314 | Appointment specialist attempt make for child last 6 month indicate code | ApptSpcAttMakFrChLst6MoIndCode | Code indicating whether the child's caregiver attempted to make an appointment with a specialist for the child in the last 6 months | Code indicating whether the child's caregiver attempted to make an appointment with a specialist for the child in the last 6 months | Specialists are doctors like surgeons, heart doctors, allergy doctors, skin doctors, and other doctors who specialize in one area of health care. In the last 6 months, did you try to make any appointments for your child to see a specialist? | 1;2;1;2 | Yes;No;Yes;No | Numeric Values |
Do not include dental visits or care your child got when he or she stayed overnight in a hospital. |
PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-04-01 09:59:58.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | 19 | |||||||||||||||||||||||||
| C59346 | Respondent age range code | RespondentAgeRangeCode | Code for the age range of the individual responding to the questionnaire. | Code for the age range of the individual responding to the questionnaire. | What is your age? | 0;1;2;3;4;5;6;7 | Under 18;18 to 24;25 to 34;35 to 44;45 to 54;55 to 64;65 to 74;75 or older | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Adult;Pediatric | Proposed | 1.00 | 2019-04-01 13:25:22.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | 36 | ||||||||||||||||||||||||||
| C59272 | Child health care provider offer option last 6 month indicate code | ChldHCPvdrOfrOptnLst6MoIndCode | Code indicating whether in the last 6 months the child's health care provider(s) offered multiple options for the child's care. | Code indicating whether in the last 6 months the child's health care provider(s) offered multiple options for the child's care. | Choices for your child's treatment or health care can include choices about medicine, surgery, or other treatment. In the last 6 months, did your child's doctor or other health provider tell you there was more than one choice for your child's treatment or health care? | 1;2;1;2 | Yes;No;Yes;No | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-03-28 15:21:15.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | CC2 | ||||||||||||||||||||||||||
| C59325 | Health plan rating scale | HlthPlanRatingScl | Scale for rating the subject/participant's health plan | Scale for rating the subject/participant's health plan | Using any number from 0 to 10, where 0 is the worst health plan possible and 10 is the best health plan possible, what number would you use to rate your child's health plan? | 1;2;3;4;5;6;7;8;9;0;10 | 1;2;3;4;5;6;7;8;9;Worst health plan possible;Best health plan possible | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-03-28 15:33:42.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | 30 | ||||||||||||||||||||||||||
| C59289 | Easy obtain special therapy child last 6 month frequency scale | EsyObtSpcTherChLst6MoFrqScl | Scale of the frequency in the last 6 months that it was easy to obtain special therapy for the child. | Scale of the frequency in the last 6 months that it was easy to obtain special therapy for the child. | In the last 6 months, how often was it easy to get this therapy for your child? | 1;2;4;3 | Never;Sometimes;Always;usually | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-03-28 15:16:41.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | CC12 | ||||||||||||||||||||||||||
| C59304 | Child personal physician listen carefully last 6 month frequency scale | ChPslPhysLstCrflLst6MoFrqScl | Scale for the frequency over the past 6 months that the child's personal physician listened carefully | Scale for the frequency over the past 6 months that the child's personal physician listened carefully | In the last 6 months, how often did your child's personal doctor listen carefully to you? | 1;2;4;3 | Never;Sometimes;Always;usually | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-03-29 10:22:22.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | 12 | ||||||||||||||||||||||||||
| C59336 | Reduced ability usual activities peers due health condition indicate code | RdAbUsAcPrDuHlCdIndCode | Code indicating whether the subject/participant's reduced ability to participate in the usual activities of his or her peers is due to a health condition | Code indicating whether the subject/participant's reduced ability to participate in the usual activities of his or her peers is due to a health condition | Is this because of any medical, behavioral, or other health condition? | 1;2;1;2 | Yes;No;Yes;No | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-04-01 12:28:42.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | CC32 | ||||||||||||||||||||||||||
| C13201 | Healthy Days Core Module (CDC HRQOL) - General health scale | CDCHRQOLGenHlthScale | The scale related to general health as part of the Healthy Days Core Module (CDC HRQOL). | The scale related to general health as part of the Healthy Days Core Module (CDC HRQOL). | In general, how would you rate your child's overall health? | 1;2;3;4;5 | Excellent;Very good;Good;Fair;Poor | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 3.00 | 2013-07-16 14:01:43.01 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
||||||||||||||||||||||||||||||
| C59315 | Easy get appointment specialist for child last 6 month frequency scale | EsGetApSpcFrChLst6MoFrqScl | Scale of the frequency in the last 6 months that it was easy to get an appointment with a specialist for the child. | Scale of the frequency in the last 6 months that it was easy to get an appointment with a specialist for the child. | In the last 6 months, how often was it easy to get appointments for your child with specialists? | 1;2;4;3 | Never;Sometimes;Always;usually | Numeric Values |
Do not include dental visits or care your child got when he or she stayed overnight in a hospital. |
PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-03-28 15:16:41.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | 20 | |||||||||||||||||||||||||
| C59347 | Respondent gender code | RespondentGenderCode | Code for the gender of the individual answering the questionnaire. | Code for the gender of the individual answering the questionnaire. | Are you male or female? | 1;2;1;2 | Male;Female;Male;Female | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Adult;Pediatric | Proposed | 1.00 | 2019-04-01 13:36:13.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | 37 | ||||||||||||||||||||||||||
| C59273 | Child health care provider discuss option pro con last 6 month indicate code | ChdHCPvdDscOptPrCnLst6MoInCode | Code indicating whether in the last 6 months the child's health care provider(s) discussed the pros and cons of multiple options for the child's care. | Code indicating whether in the last 6 months the child's health care provider(s) discussed the pros and cons of multiple options for the child's care. | In the last 6 months, did your child's doctor or other health provider talk with you about the pros and cons of each choice for your child's treatment or health care? | 1;2;1;2 | Yes;No;Yes;No | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-03-28 15:21:15.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | CC3 | ||||||||||||||||||||||||||
| C59290 | Receive help obtain special therapy child last 6 month indicate code | RcvHpObtSpThrChLst6MoIndCode | Code indicating whether help obtaining special therapy for the child was received in the last 6 months | Code indicating whether help obtaining special therapy for the child was received in the last 6 months | Did anyone from your child's health plan, doctor's office, or clinic help you get this therapy for your child? | 1;2;1;2 | Yes;No;Yes;No | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-03-29 09:26:29.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | CC13 | ||||||||||||||||||||||||||
| C59326 | Prescription medication obtain refill last 6 month indicate code | PrescrMdObtRefilLst6MoIndCode | Code indicating whether prescription medications were obtained or refilled for the subject/participant in the last 6 months. | Code indicating whether prescription medications were obtained or refilled for the subject/participant in the last 6 months. | In the last 6 months, did you get or refill any prescription medicines for your child? | 1;2;1;2 | Yes;No;Yes;No | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-04-01 11:19:28.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | CC22 | ||||||||||||||||||||||||||
| C59305 | Child personal physician show respect last 6 month frequency scale | ChPslPhysShwRspLst6MoFrqScl | Scale for the frequency over the past 6 months that the child's personal physician showed respect for what the child's caregiver had to say | Scale for the frequency over the past 6 months that the child's personal physician showed respect for what the child's caregiver had to say | In the last 6 months, how often did your child's personal doctor show respect for what you had to say? | 1;2;4;3 | Never;Sometimes;Always;usually | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-03-29 10:22:22.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | 13 | ||||||||||||||||||||||||||
| C59337 | Reduced ability usual activities peers due health condition endure 12 month indicate code | RdAbUsAcPrDuHlCdEn12MoIndCode | Code indicating whether the subject/participant's reduced ability to participate in the usual activities of his or her peers is due to a health condition that has endured or is expected to endure for at least 12 months | Code indicating whether the subject/participant's reduced ability to participate in the usual activities of his or her peers is due to a health condition that has endured or is expected to endure for at least 12 months | Is this a condition that has lasted or is expected to last for at least 12 months? | 1;2;1;2 | Yes;No;Yes;No | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-04-01 12:28:42.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | CC33 | ||||||||||||||||||||||||||
| C58703 | Hispanic Latino Spanish ethnicity indicate code | HspncLtnSpnshEthnctyIndCode | Code indicating whether the subject/participant is of Hispanic, Latino, or Spanish ethnicity. | Code indicating whether the subject/participant is of Hispanic, Latino, or Spanish ethnicity. | Is your child of Hispanic or Latino origin or descent? | 1;2 | Yes;No | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2018-11-01 09:36:30.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Core Tier 1 | Ethnicity | 1 | ||||||||||||||||||||||||||
| C59316 | Specialist seen by child last 6 month count range | SpclstSeenByChildLst6MoCtRng | Range of count of specialists seen by the child in the last 6 months | Range of count of specialists seen by the child in the last 6 months | How many specialists has your child seen in the last 6 months? | 0;2;3;4;1;5 or more | None;2;3;4;1 specialist;5 or more specialists | Alphanumeric |
Do not include dental visits or care your child got |
PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-04-01 10:11:52.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | 21 | |||||||||||||||||||||||||
| C59348 | Respondent education code | RespondentEducationCode | Code for the highest level of education of the individual answering the questionnaire. | Code for the highest level of education of the individual answering the questionnaire. | What is the highest grade or level of school that you have completed? | 1;2;3;4;5;6 | 8th grade or less;Some high school, but did not graduate;High school graduate or GED;Some college or 2-year degree;4-year college graduate;More than 4-year college degree | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Adult;Pediatric | Proposed | 1.00 | 2019-04-01 13:39:41.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | 38 | ||||||||||||||||||||||||||
| C59274 | Child health care provider ask best choice care last 6 month indicate code | ChdHCPvdAskBstChCrLs6MoInCode | Code indicating whether in the last 6 months the child's health care provider(s) asked what the best choice of options was for the child | Code indicating whether in the last 6 months the child's health care provider(s) asked what the best choice of options was for the child | In the last 6 months, when there was more than one choice for your child's treatment or health care, did your child's doctor or other health provider ask you which choice was best for your child? | 1;2;1;2 | Yes;No;Yes;No | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-03-28 15:21:15.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | CC4 | ||||||||||||||||||||||||||
| C59291 | Obtain attempt counseling child last 6 month indicate code | ObAtCounslChLst6MoIndCode | Code indicating whether counseling or treatment for emotional, developmental, or behavioral problems was obtained or attempted to be obtained for the child in the last 6 months. | Code indicating whether counseling or treatment for emotional, developmental, or behavioral problems was obtained or attempted to be obtained for the child in the last 6 months. | In the last 6 months, did you get or try to get treatment or counseling for your child for an emotional, developmental, or behavioral problem? | 1;2;1;2 | Yes;No;Yes;No | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-03-29 09:15:44.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | CC14 | ||||||||||||||||||||||||||
| C59327 | Prescription medication easy obtain health plan last 6 month frequency scale | PrscpMdEzObtHthPlnLst6MoFrqScl | Scale for the frequency over the last 6 months that it was easy to obtain prescription medications for the subject/participant using his or her health plan | Scale for the frequency over the last 6 months that it was easy to obtain prescription medications for the subject/participant using his or her health plan | In the last 6 months, how often was it easy to get prescription medicines for your child through his or her health plan? | 1;2;4;3 | Never;Sometimes;Always;usually | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-04-01 11:22:44.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | CC23 | ||||||||||||||||||||||||||
| C59306 | Child able talk about health care indicate code | ChdAblTlkAbtHlthCarIndCode | Code indicating whether the child is able to talk to doctors about his or her health care | Code indicating whether the child is able to talk to doctors about his or her health care | is your child able to talk with doctors about his or her health care? | 1;2;1;2 | Yes;No;Yes;No | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-04-01 09:24:49.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | 14 | ||||||||||||||||||||||||||
| C59338 | Special therapy indicate code | SpecialTherapyIndicateCode | Code indicating whether the subject/participant needs or receives special therapy such as physical, occupational, or speech therapy. | Code indicating whether the subject/participant needs or receives special therapy such as physical, occupational, or speech therapy. | Does your child need or get special therapy such as physical, occupational, or speech therapy? | 1;2;1;2 | Yes;No;Yes;No | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-04-01 12:38:12.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | CC34 | ||||||||||||||||||||||||||
| C59264 | Child health plan name verify indicate code | ChildHlthPlanNameVerfyIndCode | Code indicating that the study has the correct name of the child's health plan on file | Code indicating that the study has the correct name of the child's health plan on file | Our records show that your child is now in [INSERT HEALTH PLAN NAME]. Is that right? | 1;2;1;2 | Yes;No;Yes;No | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-03-28 11:45:40.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | 1 | ||||||||||||||||||||||||||
| C59317 | Specialist seen most often rating scale | SpcstSeenMostOftnRatingScl | Scale for rating the specialist the subject/participant saw most often in the last 6 months. | Scale for rating the specialist the subject/participant saw most often in the last 6 months. | We want to know your rating of the specialist your child saw most often in the last 6 months. Using any number from 0 to 10, where 0 is the worst specialist possible and 10 is the best specialist possible, what number would you use to rate that specialist? | 1;2;3;4;5;6;7;8;9;0;10 | 1;2;3;4;5;6;7;8;9;Worst specialist possible;Best specialist possible | Numeric Values |
Do not include dental visits or care your child got when he or she stayed overnight in a hospital. |
PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-03-28 15:33:42.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | 22 | |||||||||||||||||||||||||
| C59349 | Respondent relation patient code | RespondRelatePtCode | Code for the relationship to the patient of the individual answering the questionnaire. | Code for the relationship to the patient of the individual answering the questionnaire. | How are you related to the child? | 1;2;3;4;5;6 | Mother or father;Grandparent;Aunt or uncle;Older sibling;Other relative;Legal guardian | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Adult;Pediatric | Proposed | 1.00 | 2019-04-01 13:45:19.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | 39 | ||||||||||||||||||||||||||
| C59275 | Child health care rating last 6 month scale | ChldHCRtngLst6MoScl | Scale for rating the child's health care over the last 6 months. | Scale for rating the child's health care over the last 6 months. | Using any number from 0 to 10, where 0 is the worst health care possible and 10 is the best health care possible, what number would you use to rate all your child's health care in the last 6 months? | 0;1;2;3;4;5;6;7;8;9;10 | Worst health care possible;1;2;3;4;5;6;7;8;9;Best health care possible | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-03-28 15:33:42.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | 8 | ||||||||||||||||||||||||||
| C59292 | Easy obtain counseling child last 6 month frequency scale | EsyObtCounslChLst6MoFrqScl | Scale of the frequency in the last 6 months that it was easy to obtain counseling or treatment for emotional, developmental, or behavioral problems for the child. | Scale of the frequency in the last 6 months that it was easy to obtain counseling or treatment for emotional, developmental, or behavioral problems for the child. | In the last 6 months, how often was it easy to get this treatment o r counseling for your child? | 1;2;3 | Never;Sometimes;usually | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-03-28 15:16:41.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | CC15 | ||||||||||||||||||||||||||
| C59328 | Receive assistance obtain prescription medication indicate code | RcvAsstObtPrscrpMdIndCode | Code indicating whether assistance was received in obtaining prescription medications | Code indicating whether assistance was received in obtaining prescription medications | Did anyone from your child's health plan, doctor's office, or clinic help you get your child's prescription medicines? | 1;2;1;2 | Yes;No;Yes;No | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-04-01 11:37:53.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | CC24 | ||||||||||||||||||||||||||
| C59307 | Child personal physician explain clearly to child last 6 month frequency scale | ChPslPhyExpClrToChLst6MoFrqScl | Scale for the frequency over the past 6 months that the child's personal physician explained things in a way that was easy for the child to understand | Scale for the frequency over the past 6 months that the child's personal physician explained things in a way that was easy for the child to understand | In the last 6 months, how often did your child's personal doctor explain things in a way that was easy for your child to understand? | 1;2;4;3 | Never;Sometimes;Always;usually | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-03-29 10:22:22.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | 15 | ||||||||||||||||||||||||||
| C59339 | Special therapy due health condition indicate code | SpcTherDueHlthCondIndCode | Code indicating whether the subject/participant needs or receives special therapy such as physical, occupational, or speech therapy due to a health condition | Code indicating whether the subject/participant needs or receives special therapy such as physical, occupational, or speech therapy due to a health condition | Is this because of any medical, behavioral, or other health condition? | 1;2;1;2 | Yes;No;Yes;No | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-04-01 12:38:12.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | CC35 | ||||||||||||||||||||||||||
| C59265 | Child health plan name | ChildHlthPlanName | Name of the child's health plan | Name of the child's health plan | What is the name of your child's health plan? | Alphanumeric |
Collect if "Child health plan name verify indicate code" is answered 2 (No). |
PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-03-28 11:50:08.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X | 100 |
Free-Form Entry |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | 2 | ||||||||||||||||||||||||||
| C59318 | Care via health plan last 6 month indicate code | CareViaHlthPlanLst6MoIndCode | Code indicating whether care was sought through the subject/participant's health plan in the last 6 months | Code indicating whether care was sought through the subject/participant's health plan in the last 6 months | In the last 6 months, did you try to get any kind of care, tests, or treatment for your child through his or her health plan? | 1;2;1;2 | Yes;No;Yes;No | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-04-01 10:28:51.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | 23 | ||||||||||||||||||||||||||
| C59350 | Respondent receive help complete questionnaire indicate code | RespRcvHlpCmpltQaireIndCode | Code indicating whether the respondent received assistance in completing the questionnaire. | Code indicating whether the respondent received assistance in completing the questionnaire. | Did someone help you complete this survey? | 1;2;1;2 | Yes;No;Yes;No | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Adult;Pediatric | Proposed | 1.00 | 2019-04-01 13:50:03.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | 40 | ||||||||||||||||||||||||||
| C59276 | Child enroll school daycare indicate code | ChildEnrolSchlDycrIndCode | Code indicating whether the child is currently enrolled in school or daycare. | Code indicating whether the child is currently enrolled in school or daycare. | is your child now enrolled in any kind of school or daycare? | 1;2;1;2 | Yes;No;Yes;No | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-03-28 15:40:46.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | CC5 | ||||||||||||||||||||||||||
| C59293 | Receive help obtain counseling child last 6 month indicate code | RcvHpObtCounslChLst6MoIndCode | Code indicating whether help obtaining counseling or treatment for emotional, developmental, or behavioral problems for the child was received in the last 6 months | Code indicating whether help obtaining counseling or treatment for emotional, developmental, or behavioral problems for the child was received in the last 6 months | Did anyone from your child's health plan, doctor's office, or clinic help you get this treatment or counseling for your child? | 1;2;1;2 | Yes;No;Yes;No | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-03-29 09:26:29.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | CC16 | ||||||||||||||||||||||||||
| C59329 | Prescription medication need use indicate code | PrscrpMdNeedUseIndCode | Code indicating whether the subject/participant needs or uses prescription medications other than vitamins | Code indicating whether the subject/participant needs or uses prescription medications other than vitamins | Does your child currently need or use medicine prescribed by a doctor (other than vitamins)? | 1;2;1;2 | Yes;No;Yes;No | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-04-01 11:46:19.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | CC25 | ||||||||||||||||||||||||||
| C59308 | Child personal physician spend enough time with child last 6 month frequency scale | ChPslPhySpEnTmWChLst6MoFrqScl | Scale for the frequency over the past 6 months that the child's personal physician spent enough time with the child | Scale for the frequency over the past 6 months that the child's personal physician spent enough time with the child | In the last 6 months, how often did your child's personal doctor spend enough time with your child? | 1;2;4;3 | Never;Sometimes;Always;usually | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-03-29 10:22:22.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | 16 | ||||||||||||||||||||||||||
| C59340 | Special therapy due health condition endure 12 month indicate code | SpThrDuHlthCndEnd12MoIndCode | Code indicating whether the subject/participant needs or receives special therapy such as physical, occupational, or speech therapy due to a health condition that has endured or is expected to endure for at least 12 months | Code indicating whether the subject/participant needs or receives special therapy such as physical, occupational, or speech therapy due to a health condition that has endured or is expected to endure for at least 12 months | Is this a condition that has lasted or is expected to last for at least 12 months? | 1;2;1;2 | Yes;No;Yes;No | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-04-01 12:38:12.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | CC36 | ||||||||||||||||||||||||||
| C59266 | Child need urgent care last 6 month indicate code | ChldNeedUrgtCareLst6MoIndCode | Code indicating whether the child needed urgent care in the last 6 months. | Code indicating whether the child needed urgent care in the last 6 months. | In the last 6 months, did your child have an illness, injury, or condition that needed care right away in a clinic, emergency room, or doctor's office? | 1;2;1;2 | Yes;No;Yes;No | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-03-28 11:52:32.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | 3 | ||||||||||||||||||||||||||
| C59319 | Easy obtain care child health plan last 6 month frequency scale | EsyObtCrChHlthPlnLst6MoFrqScl | Scale of the frequency in the last 6 months that it was easy to obtain care for the child through his or her health plan | Scale of the frequency in the last 6 months that it was easy to obtain care for the child through his or her health plan | In the last 6 months, how often was it easy to get the care, tests, or treatment you thought your child needed through his or her health plan? | 1;2;4;3 | Never;Sometimes;Always;usually | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-03-28 15:16:41.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | 24 | ||||||||||||||||||||||||||
| C59277 | Child health care provider contact school daycare last 6 month indicate code | ChdHCPvdCntSchDycLst6MoIndCode | Code indicating whether the child's health care providers contacted school or daycare about the child's health or care in the last 6 months. | Code indicating whether the child's health care providers contacted school or daycare about the child's health or care in the last 6 months. | In the last 6 months, did you need your child's doctors or other health providers to contact a school or daycare center about your child's health or health care? | 1;2;1;2 | Yes;No;Yes;No | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-03-28 15:44:38.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | CC6 | ||||||||||||||||||||||||||
| C59294 | Child more one kind health care provider service last 6 month indicate code | ChlMr1KdHthCrPvSvLst6MoIndCode | Code indicating whether child received care from more than one health care provider or service in the last 6 months. | Code indicating whether child received care from more than one health care provider or service in the last 6 months. | In the last 6 months, did your child get care from more than one kind of health care provider or use more than one kind of health care service? | 1;2;1;2 | Yes;No;Yes;No | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-03-29 09:53:45.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | CC17 | ||||||||||||||||||||||||||
| C59330 | Prescription medication health condition indicate code | PrscrpMdHlthCondIndCode | Code indicating whether the subject/participant needs or uses prescription medications other than vitamins because of a health condition | Code indicating whether the subject/participant needs or uses prescription medications other than vitamins because of a health condition | Is this because of any medical, behavioral, or other health condition? | 1;2;1;2 | Yes;No;Yes;No | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-04-01 11:46:19.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | CC26 | ||||||||||||||||||||||||||
| C59309 | Child personal physician talk about child feel grow behave last 6 month indicate code | ChPrPhTkAbChFlGrBhLs6MoIndCode | Code indicating whether the child's personal physician talked in the last 6 months about how the child is feeling, growing, or behaving | Code indicating whether the child's personal physician talked in the last 6 months about how the child is feeling, growing, or behaving | In the last 6 months, did your child's personal doctor talk with you about how your child is feeling, growing, or behaving? | 1;2;1;2 | Yes;No;Yes;No | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-04-01 09:24:49.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | 17 | ||||||||||||||||||||||||||
| C59341 | Problem emotion behavior development indicate code | PrbEmBhvDevIndCode | Code indicating whether the subject/participant has emotional, developmental, or behavioral problems for which he or she needs or receives treatment | Code indicating whether the subject/participant has emotional, developmental, or behavioral problems for which he or she needs or receives treatment | Does your child have any kind of emotional, developmental, or behavioral problem for which he or she needs or gets treatment or counseling? | 1;2;1;2 | Yes;No;Yes;No | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-04-01 12:45:35.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | CC37 | ||||||||||||||||||||||||||
| C59267 | Child receive timely urgent care last 6 month reliability scale | ChdRcvTmlyUrgtCrLst6MoRelScl | Scale of how reliably the child received timely urgent care in the last 6 months. | Scale of how reliably the child received timely urgent care in the last 6 months. | In the last 6 months, when your child needed care right away, how often did your child get care as soon as you thought he or she needed? | 1;2;4;3 | Never;Sometimes;Always;usually | Numeric Values |
Collect if "Child need urgent care last 6 month indicate code" is answered 1 (Yes). |
PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-03-28 11:52:32.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | 4 | |||||||||||||||||||||||||
| C59320 | Use health plan customer service last 6 month indicate code | UseHlthPlnCustSvcLst6MoIndCode | Code indicating whether attempts were made to use customer service at the subject/participant's health plan in the last 6 months | Code indicating whether attempts were made to use customer service at the subject/participant's health plan in the last 6 months | In the last 6 months, did you try to get information or help from customer service at your child's health plan? | 1;2;1;2 | Yes;No;Yes;No | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-04-01 10:38:36.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | 25 | ||||||||||||||||||||||||||
| C59278 | Child health care provider help contact school daycare last 6 month indicate code | ChdHCPvHpCntSchDycLst6MoInCode | Code indicating whether the child's health care providers helped contact school or daycare about the child's health or care in the last 6 months. | Code indicating whether the child's health care providers helped contact school or daycare about the child's health or care in the last 6 months. | In the last 6 months, did you get the help you needed from your child's doctors or other health providers in contacting your child's school or daycare? | 1;2;1;2 | Yes;No;Yes;No | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-03-28 15:44:38.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | CC7 | ||||||||||||||||||||||||||
| C59295 | Receive help coordinate different health care provider service last 6 month indicate code | RcHpCordDfHlCrPvSvLs6MoIndCode | Code indicating whether child's health plan, doctor's office, or clinic helped coordinate your child's care among different providers or services in the last 6 months | Code indicating whether child's health plan, doctor's office, or clinic helped coordinate your child's care among different providers or services in the last 6 months | In the last 6 months, did anyone from your child's health plan, doctor's office, or clinic help coordinate your child's care among these different providers or services? | 1;2;1;2 | Yes;No;Yes;No | Numeric Values | PhenX Protocol: Quality of Care - Children (#820102) | Pediatric | Proposed | 1.00 | 2019-03-29 10:03:32.0 | PhenX Toolkit: Quality of Care - Children | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Children | CC18 |