CDE Detailed Report
Disease: Sickle Cell Disease
Sub-Domain: Additional Proposed Instruments
CRF: PhenX Toolkit: Self-efficacy in Sickle Cell Disease
Sub-Domain: Additional Proposed Instruments
CRF: PhenX Toolkit: Self-efficacy in Sickle Cell Disease
9 results.
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Additional Notes (Question Text) | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guideline) | Sub Domain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | Source | Form Set | Form | Field | Domain | CDASH Variable | CDASH Definition | CDASH Label | Controlled Terminology | Prompt | Essentiality | Question Text | CDASH imp guidance | SDTM IG target | csDSR | PhenX | Data Type | CRF Completion Inst | SDTMIG Target Var | SDTMIG Target Map | Codelist Name | PVs | Pre Pop Value | Query Display | List Style |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C59380 | Prevent sickle cell pain interfere sleep sure scale | PrvtntSCPnIntrfrSleepSurScl | Scale of the subject/participant's conviction that he or she can prevent sickle cell pain from interfering with his or her sleep | Scale of the subject/participant's conviction that he or she can prevent sickle cell pain from interfering with his or her sleep | How sure are you that you can keep sickle cell disease pain from interfering with your sleep? | 1;2;3;4;5 | Not sure at all;Not sure;Neither;Sure;Very sure | Numeric Values | PhenX Protocol: Self-efficacy in Sickle Cell Disease (#820401) | Adult;Pediatric | Proposed | 1.00 | 2019-04-02 14:25:49.0 | PhenX Toolkit: Self-efficacy in Sickle Cell Disease | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Self-Efficacy in SCD | 3 | ||||||||||||||||||||||||||
| C59381 | Reduce sickle cell pain method other than medication sure scale | RdcSCPnMthOthrThnMdSurScl | Scale of the subject/participant's conviction that he or she can reduce his or her sickle cell pain using methods other than medication | Scale of the subject/participant's conviction that he or she can reduce his or her sickle cell pain using methods other than medication | How sure are you that you can reduce your sickle cell disease pain by using methods other than taking medications? | 1;2;3;4;5 | Not sure at all;Not sure;Neither;Sure;Very sure | Numeric Values | PhenX Protocol: Self-efficacy in Sickle Cell Disease (#820401) | Adult;Pediatric | Proposed | 1.00 | 2019-04-02 14:25:49.0 | PhenX Toolkit: Self-efficacy in Sickle Cell Disease | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Self-Efficacy in SCD | 4 | ||||||||||||||||||||||||||
| C59382 | Control frequency timing tiredness sure scale | CtrlFrqTimngTirdnssSurScl | Scale of the subject/participant's conviction that he or she can control the frequency or timing of his or her tiredness | Scale of the subject/participant's conviction that he or she can control the frequency or timing of his or her tiredness | How sure are you that you can control how often or when you get tired? | 1;2;3;4;5 | Not sure at all;Not sure;Neither;Sure;Very sure | Numeric Values | PhenX Protocol: Self-efficacy in Sickle Cell Disease (#820401) | Adult;Pediatric | Proposed | 1.00 | 2019-04-02 14:25:49.0 | PhenX Toolkit: Self-efficacy in Sickle Cell Disease | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Self-Efficacy in SCD | 5 | ||||||||||||||||||||||||||
| C59383 | Do something improve mood if depressed sure scale | DoSmthgImpvMdIfDprssdSurScl | Scale of the subject/participant's conviction that he or she can do something to improve his or her mood if he or she is depressed. | Scale of the subject/participant's conviction that he or she can do something to improve his or her mood if he or she is depressed. | How sure are you that you can do something to help yourself feel better if you are feeling sad or blue? | 1;2;3;4;5 | Not sure at all;Not sure;Neither;Sure;Very sure | Numeric Values | PhenX Protocol: Self-efficacy in Sickle Cell Disease (#820401) | Adult;Pediatric | Proposed | 1.00 | 2019-04-02 14:25:49.0 | PhenX Toolkit: Self-efficacy in Sickle Cell Disease | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Self-Efficacy in SCD | 6 | ||||||||||||||||||||||||||
| C59384 | Comparative management of daily life sure scale | CompMgmtOfDlyLifSurScl | Scale of the subject/participant's conviction that he or she can manage his or her daily life, as compared to other people with sickle cell disease | Scale of the subject/participant's conviction that he or she can manage his or her daily life, as compared to other people with sickle cell disease | As compared with other people with sickle cell disease, how sure are you that you can manage your life from day-to-day? | 1;2;3;4;5 | Not sure at all;Not sure;Neither;Sure;Very sure | Numeric Values | PhenX Protocol: Self-efficacy in Sickle Cell Disease (#820401) | Adult;Pediatric | Proposed | 1.00 | 2019-04-02 14:25:49.0 | PhenX Toolkit: Self-efficacy in Sickle Cell Disease | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Self-Efficacy in SCD | 7 | ||||||||||||||||||||||||||
| C59385 | Manage sickle cell symptom do things enjoy sure scale | MngSCSympDoThngEnjySurScl | Scale of the subject/participant's conviction that he or she can manage his or her sickle cell symptoms well enough to do the things he or she enjoys doing | Scale of the subject/participant's conviction that he or she can manage his or her sickle cell symptoms well enough to do the things he or she enjoys doing | How sure are you that you can manage your sickle cell disease symptoms so that you can do the things you enjoy doing? | 1;2;3;4;5 | Not sure at all;Not sure;Neither;Sure;Very sure | Numeric Values | PhenX Protocol: Self-efficacy in Sickle Cell Disease (#820401) | Adult;Pediatric | Proposed | 1.00 | 2019-04-02 14:25:49.0 | PhenX Toolkit: Self-efficacy in Sickle Cell Disease | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Self-Efficacy in SCD | 8 | ||||||||||||||||||||||||||
| C59386 | Deal with frustration have sickle cell disease sure scale | DlWFrstrtnHvSCDSurScl | Scale of the subject/participant's conviction that he or she can deal with the frustration of having sickle cell disease | Scale of the subject/participant's conviction that he or she can deal with the frustration of having sickle cell disease | How sure are you that you can deal with the frustration of having sickle cell disease? | 1;2;3;4;5 | Not sure at all;Not sure;Neither;Sure;Very sure | Numeric Values | PhenX Protocol: Self-efficacy in Sickle Cell Disease (#820401) | Adult;Pediatric | Proposed | 1.00 | 2019-04-02 14:25:49.0 | PhenX Toolkit: Self-efficacy in Sickle Cell Disease | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Self-Efficacy in SCD | 9 | ||||||||||||||||||||||||||
| C59378 | Do something cut down pain sure scale | DoSmthgCtDwnPnSurScl | Scale of the subject/participant's conviction that he or she can do something to substantially reduce the pain he or she feels | Scale of the subject/participant's conviction that he or she can do something to substantially reduce the pain he or she feels | How sure are you that you can do something to cut down on most of the pain? | 1;2;3;4;5 | Not sure at all;Not sure;Neither;Sure;Very sure | Numeric Values | PhenX Protocol: Self-efficacy in Sickle Cell Disease (#820401) | Adult;Pediatric | Proposed | 1.00 | 2019-04-02 14:25:49.0 | PhenX Toolkit: Self-efficacy in Sickle Cell Disease | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Self-Efficacy in SCD | 1 | ||||||||||||||||||||||||||
| C59379 | Keep doing most things daily sure scale | KpDoMostThgnsDlySurScl | Scale of the subject/participant's conviction that he or she can keep doing most of the things he or she does on a daily basis | Scale of the subject/participant's conviction that he or she can keep doing most of the things he or she does on a daily basis | How sure are you that you can keep doing most of the things you do day-to-day? | 1;2;3;4;5 | Not sure at all;Not sure;Neither;Sure;Very sure | Numeric Values | PhenX Protocol: Self-efficacy in Sickle Cell Disease (#820401) | Adult;Pediatric | Proposed | 1.00 | 2019-04-02 14:25:49.0 | PhenX Toolkit: Self-efficacy in Sickle Cell Disease | Additional Proposed Instruments | Phen-X |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Self-Efficacy in SCD | 2 |
9 results.