CDE Detailed Report
Disease: Sickle Cell Disease
Sub-Domain: Additional Proposed Instruments
CRF: PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles - Calibrated Items
Sub-Domain: Additional Proposed Instruments
CRF: PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles - Calibrated Items
14 results.
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Additional Notes (Question Text) | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guideline) | Sub Domain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | Source | Form Set | Form | Field | Domain | CDASH Variable | CDASH Definition | CDASH Label | Controlled Terminology | Prompt | Essentiality | Question Text | CDASH imp guidance | SDTM IG target | csDSR | PhenX | Data Type | CRF Completion Inst | SDTMIG Target Var | SDTMIG Target Map | Codelist Name | PVs | Pre Pop Value | Query Display | List Style |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C20754 | Patient-Reported Outcome Measurement Information System (PROMIS) - Work amount satisfaction past week scale | PROMISSatsfyHowMuchWorkScale | The scale which represents how often the participant's satisfaction with how much work he/she could do in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents how often the participant's satisfaction with how much work he/she could do in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I am satisfied with how much work I can do (include work at home) | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | Adult;Pediatric | Proposed | 1.00 | 2015-05-20 17:07:03.0 | PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles - Calibrated Items | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20769 | Patient-Reported Outcome Measurement Information System (PROMIS) - Dependability assistance ability satisfaction past week scale | PROMISSatsfyAbiMeetNeedsScale | The scale which represents the extent of the participant's satisfaction with his/her ability to meet the needs of those who depend on him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents the extent of the participant's satisfaction with his/her ability to meet the needs of those who depend on him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I am satisfied with my ability to meet the needs of those who depend on me | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | Adult;Pediatric | Proposed | 1.00 | 2015-05-20 17:07:03.0 | PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles - Calibrated Items | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20755 | Patient-Reported Outcome Measurement Information System (PROMIS) - Family relationship ability good satisfaction past week scale | PROMISFltGoodAbiDoForFamScale | The scale which represents the extent to which the participant felt good about his ability to do things for his/her family in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents the extent to which the participant felt good about his ability to do things for his/her family in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I feel good about my ability to do things for my family | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | Adult;Pediatric | Proposed | 1.00 | 2015-05-20 17:07:03.0 | PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles - Calibrated Items | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20771 | Patient-Reported Outcome Measurement Information System (PROMIS) - Errand performance ability satisfaction past week scale | PROMISSatsfyAbiRunErrandsScale | The scale which represents how often the participant's satisfaction with his/her ability to run errands in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents how often the participant's satisfaction with his/her ability to run errands in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I am satisfied with my ability to run errands | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | Adult;Pediatric | Proposed | 1.00 | 2015-05-20 17:07:03.0 | PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles - Calibrated Items | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20756 | Patient-Reported Outcome Measurement Information System (PROMIS) - Work important completion ability satisfaction past week scale | PROMISSatsfyAbiImprtntWrkScale | The scale which represents the extent of the participant's satisfaction with his/her ability to do the work that is really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents the extent of the participant's satisfaction with his/her ability to do the work that is really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I am satisfied with my ability to do the work that is really important to me (include work at home) | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | Adult;Pediatric | Proposed | 1.00 | 2015-05-20 17:07:03.0 | PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles - Calibrated Items | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20757 | Patient-Reported Outcome Measurement Information System (PROMIS) - Work time spent satisfaction past week scale | PROMISSatsfyTimeDoWorkScale | The scale which represents the extent of the participant's satisfaction with the amount of time he/she spent doing work in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents the extent of the participant's satisfaction with the amount of time he/she spent doing work in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I am satisfied with the amount of time I spend doing work (include work at home) | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | Adult;Pediatric | Proposed | 1.00 | 2015-05-20 17:07:03.0 | PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles - Calibrated Items | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20758 | Patient-Reported Outcome Measurement Information System (PROMIS) - Family accomplishment happy ability satisfaction past week scale | PROMISHappyHowMuchDoFamScale | The scale which represents how often the participant was happy with how much he/she did for his family in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents how often the participant was happy with how much he/she did for his family in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I am happy with how much I do for my family | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | Adult;Pediatric | Proposed | 1.00 | 2015-05-20 17:07:03.0 | PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles - Calibrated Items | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20759 | Patient-Reported Outcome Measurement Information System (PROMIS) - Work ability satisfaction past week scale | PROMISSatsfyAbiToWorkScale | The scale which represents how often the participant's satisfaction with his/her ability to work in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents how often the participant's satisfaction with his/her ability to work in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I am satisfied with my ability to work (include work at home) | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | Adult;Pediatric | Proposed | 1.00 | 2015-05-20 17:07:03.0 | PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles - Calibrated Items | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20760 | Patient-Reported Outcome Measurement Information System (PROMIS) - Work quality good ability satisfaction past week scale | PROMISWorkQualWantedScale | The scale which represents how often the the quality of the participant's work was as good as he/she wants it to be in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents how often the the quality of the participant's work was as good as he/she wants it to be in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days the quality of my work is as good as I want it to be (include work at home) | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | Adult;Pediatric | Proposed | 1.00 | 2015-05-20 17:07:03.0 | PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles - Calibrated Items | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20761 | Patient-Reported Outcome Measurement Information System (PROMIS) - Daily routine performance time spent satisfaction past week scale | PROMISSatsfySpendDayRoutnScale | The scale which represents the extent of the participant's satisfaction with the amount of time he/she spent performing daily routines in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents the extent of the participant's satisfaction with the amount of time he/she spent performing daily routines in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I am satisfied with the amount of time I spend doing my daily routines | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | Adult;Pediatric | Proposed | 1.00 | 2015-05-20 17:07:03.0 | PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles - Calibrated Items | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20763 | Patient-Reported Outcome Measurement Information System (PROMIS) - Household chore task ability satisfaction past week scale | PROMISSatsfyAbiHouseworkScale | The scale which represents the extent of the participant's satisfaction with his/her ability to do household chores/tasks in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents the extent of the participant's satisfaction with his/her ability to do household chores/tasks in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I am satisfied with my ability to do household chores/tasks | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | Adult;Pediatric | Proposed | 1.00 | 2015-05-20 17:07:03.0 | PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles - Calibrated Items | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20765 | Patient-Reported Outcome Measurement Information System (PROMIS) - Household responsibity regular person ability satisfaction past week scale | PROMISSatsfyAbiDoRspnsbltScale | The scale which represents the extent of the participant's satisfaction with his/her ability to do regular personal and household responsibilities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents the extent of the participant's satisfaction with his/her ability to do regular personal and household responsibilities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I am satisfied with my ability to do regular personal and household responsibilities | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | Adult;Pediatric | Proposed | 1.00 | 2015-05-20 17:07:03.0 | PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles - Calibrated Items | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20753 | Patient-Reported Outcome Measurement Information System (PROMIS) - Family relationship ability satisfaction past week scale | PROMISSatsfyAbiDoForFamlyScale | The scale which represents the extent of the participant's satisfaction with his/her ability to do things for his family in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents the extent of the participant's satisfaction with his/her ability to do things for his family in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I am satisfied with my ability to do things for my family. | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | Adult;Pediatric | Proposed | 1.00 | 2015-05-20 17:07:03.0 | PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles - Calibrated Items | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20767 | Patient-Reported Outcome Measurement Information System (PROMIS) - Daily routine performance ability satisfaction past week scale | PROMISSatsfyAbiDoDayRoutnScale | The scale which represents the extent of the participant's satisfaction with his/her ability to perform daily routines in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents the extent of the participant's satisfaction with his/her ability to perform daily routines in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I am satisfied with my ability to perform my daily routines | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | Adult;Pediatric | Proposed | 1.00 | 2015-05-20 17:07:03.0 | PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles - Calibrated Items | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
14 results.