CDE Detailed Report
Disease: Sickle Cell Disease
Sub-Domain: Additional Proposed Instruments
CRF: PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities - Calibrated Items
Sub-Domain: Additional Proposed Instruments
CRF: PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities - Calibrated Items
12 results.
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Additional Notes (Question Text) | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guideline) | Sub Domain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | Source | Form Set | Form | Field | Domain | CDASH Variable | CDASH Definition | CDASH Label | Controlled Terminology | Prompt | Essentiality | Question Text | CDASH imp guidance | SDTM IG target | csDSR | PhenX | Data Type | CRF Completion Inst | SDTMIG Target Var | SDTMIG Target Map | Codelist Name | PVs | Pre Pop Value | Query Display | List Style |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C20749 | Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship participation happiness past week scale | PROMISHpyHowMuchDidFrndsScale | The scale which represents how often the participant was happy with how much he/she did for his friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents how often the participant was happy with how much he/she did for his friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I am happy with how much I do for my friends | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | Adult;Pediatric | Proposed | 1.00 | 2015-05-20 17:07:03.0 | PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities - Calibrated Items | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20750 | Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship time spent visit satisfaction past week scale | PROMISSatsfyTimeVisitFrndScale | The scale which represents the extent of the participant's satisfaction with the amount of time spent visiting his/her friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents the extent of the participant's satisfaction with the amount of time spent visiting his/her friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I am satisfied with the amount of time I spend visiting friends | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | Adult;Pediatric | Proposed | 1.00 | 2015-05-20 17:07:03.0 | PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities - Calibrated Items | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20751 | Patient-Reported Outcome Measurement Information System (PROMIS) - Home fun ability satisfaction past week scale | PROMISSatsfyAbiFunAtHomeScale | The scale which represents the extent of the participant's satisfaction with his/her ability to do things for fun at home in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents the extent of the participant's satisfaction with his/her ability to do things for fun at home in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I am satisfied with my ability to do things for fun at home (like reading, listening to music, etc.) | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | Adult;Pediatric | Proposed | 1.00 | 2015-05-20 17:07:03.0 | PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities - Calibrated Items | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20741 | Patient-Reported Outcome Measurement Information System (PROMIS) - Leisure activity time amount satisfaction past week scale | PROMISSatsfyLeisureTimeScale | The scale which represents the extent of the participant's satisfaction with the amount of time he spent doing leisure activities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents the extent of the participant's satisfaction with the amount of time he spent doing leisure activities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I am satisfied with the amount of time I spend doing leisure activities | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | Adult;Pediatric | Proposed | 1.00 | 2015-05-20 17:07:03.0 | PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities - Calibrated Items | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20752 | Patient-Reported Outcome Measurement Information System (PROMIS) - Leisure activity complete important ability satisfaction past week scale | PROMISSatsfyAbiLeisureActScale | The scale which represents the extent of the participant's satisfaction with his/her ability to do all of the leisure activities that are really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents the extent of the participant's satisfaction with his/her ability to do all of the leisure activities that are really important to him in the past 7 days, as part of the PROMIS | In the past 7 days I am satisfied with my ability to do all of the leisure activities that are really important to me | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | Adult;Pediatric | Proposed | 1.00 | 2015-05-20 17:07:03.0 | PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities - Calibrated Items | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20742 | Patient-Reported Outcome Measurement Information System (PROMIS) - Social activity current level satisfaction past week scale | PROMISSatsfyLvlSocActvtyScale | The scale which represents the extent of the participant's satisfaction with his/her current level of social activity in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents the extent of the participant's satisfaction with his/her current level of social activity in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I am satisfied with my current level of social activity | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | Adult;Pediatric | Proposed | 1.00 | 2015-05-20 17:07:03.0 | PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities - Calibrated Items | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20743 | Patient-Reported Outcome Measurement Information System (PROMIS) - Important community activity ability satisfaction past week scale | PROMISSatsfyCommunityActScale | The scale which represents the extent of the participant's satisfaction with his/her ability to do all of the community activities that are really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents the extent of the participant's satisfaction with his/her ability to do the community activities that are important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I am satisfied with my ability to do all of the community activities that are really important to me | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | Adult;Pediatric | Proposed | 1.00 | 2015-05-20 17:07:03.0 | PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities - Calibrated Items | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20744 | Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship ability satisfaction past week scale | PROMISSatsfyDoForFriendsScale | The scale which represents the extent of the participant's satisfaction with his/her ability to do things for his friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents the extent of the participant's satisfaction with his/her ability to do things for his friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I am satisfied with my ability to do things for my friends | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | Adult;Pediatric | Proposed | 1.00 | 2015-05-20 17:07:03.0 | PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities - Calibrated Items | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20745 | Patient-Reported Outcome Measurement Information System (PROMIS) - Leisure activity ability satisfaction past week scale | PROMISSatsfyAbiDoLeisrActScale | The scale which represents the extent of the participant's satisfaction with his/her ability to do leisure activities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents the extent of the participant's satisfaction with his/her ability to do leisure activities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I am satisfied with my ability to do leisure activities | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | Adult;Pediatric | Proposed | 1.00 | 2015-05-20 17:07:03.0 | PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities - Calibrated Items | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20746 | Patient-Reported Outcome Measurement Information System (PROMIS) - Current level friend activity satisfaction past week scale | PROMISSatsfyLvlActWthFrndScale | The scale which represents the extent of the participant's satisfaction with his/her current level of activities with friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents the extent of the participant's satisfaction with his/her current level of activities with friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I am satisfied with my current level of activities with my friends | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | Adult;Pediatric | Proposed | 1.00 | 2015-05-20 17:07:03.0 | PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities - Calibrated Items | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20747 | Patient-Reported Outcome Measurement Information System (PROMIS) - Outside home fun ability satisfaction past week scale | PROMISSatsfyDoFunOutHomeScale | The scale which represents the extent of the participant's satisfaction with his/her ability to do things for fun outside of the home in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents the extent of the participant's satisfaction with his/her ability to do things for fun outside of the home in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I am satisfied with my ability to do things for fun outside my home | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | Adult;Pediatric | Proposed | 1.00 | 2015-05-20 17:07:03.0 | PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities - Calibrated Items | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
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| C20748 | Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship good ability satisfaction past week scale | PROMISFltGoodAbiDoForFrndScale | The scale which represents the extent to which the participant felt good about his/her ability to do things for his friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | The scale which represents the extent to which the participant felt good about his/her ability to do things for his friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). | In the past 7 days I feel good about my ability to do things for my friends | 1;2;3;4;5 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | Adult;Pediatric | Proposed | 1.00 | 2015-05-20 17:07:03.0 | PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities - Calibrated Items | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
12 results.