CDE Detailed Report
Disease: Sickle Cell Disease
Sub-Domain: Outcomes and End Points
CRF: PROMIS Pediatric Global Health 7 2
Sub-Domain: Outcomes and End Points
CRF: PROMIS Pediatric Global Health 7 2
9 results.
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Additional Notes (Question Text) | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guideline) | Sub Domain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | Source | Form Set | Form | Field | Domain | CDASH Variable | CDASH Definition | CDASH Label | Controlled Terminology | Prompt | Essentiality | Question Text | CDASH imp guidance | SDTM IG target | csDSR | PhenX | Data Type | CRF Completion Inst | SDTMIG Target Var | SDTMIG Target Map | Codelist Name | PVs | Pre Pop Value | Query Display | List Style |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C60659 | PROMIS Pediatric Global Health 7 Plus 2 - trouble sleep with pain past 7 day frequency scale | PROMISPGH7Pl2TbSlWPnPs7DyFqScl | Scale of the frequency over the past 7 days with which the subject/participant had trouble sleeping when he or she was experiencing pain, as part of the PROMIS Pediatric Global Health 7+2 questionnaire. | Scale of the frequency over the past 7 days with which the subject/participant had trouble sleeping when he or she was experiencing pain, as part of the PROMIS Pediatric Global Health 7+2 questionnaire. | In the past 7 days I had trouble sleeping when I had pain | 1;2;3;4;5 | Never;Almost Never;Sometimes;Often;Almost always | Numeric Values | Pediatric | Core | 1.00 | 2021-04-30 13:10:14.0 | PROMIS Pediatric Global Health 7+2 | Outcomes and End Points | Global Health/Quality of Life |
Single Pre-Defined Value Selected |
PROMIS | Pediatric Global Health 7+2 Questionnaire | 3793R1r | ||||||||||||||||||||||||||||
| C54688 | PROMIS - Global Health quality of life scale | PROMISGlbHlthQualOfLfScl | Scale related to an individual's rating of his/her quality of life, as part of the PROMIS Global Health | Scale related to an individual's rating of his/her quality of life, as part of the PROMIS Global Health | In general, would you say your quality of life is: | 1;2;3;4;5;1;2;3;4;5 | Poor;Fair;Good;Very Good;Excellent;Poor;Fair;Good;Very Good;Excellent | Alphanumeric | Pediatric | Core | 1.00 | 2017-04-07 15:34:25.0 | PROMIS Pediatric Global Health 7+2 | Outcomes and End Points | Global Health/Quality of Life |
Single Pre-Defined Value Selected |
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| C54689 | PROMIS - Global Health physical health rate scale | PROMISGlbHlthPhysHlthRtScl | Scale related to an individual's rating of his/her physical health, as part of the PROMIS Global Health | Scale related to an individual's rating of his/her physical health, as part of the PROMIS Global Health | In general, how would you rate your physical health? | 1;2;3;4;5;1;2;3;4;5 | Poor;Fair;Good;Very Good;Excellent;Poor;Fair;Good;Very Good;Excellent | Numeric Values | Pediatric | Core | 1.00 | 2017-04-07 15:34:25.0 | PROMIS Pediatric Global Health 7+2 | Outcomes and End Points | Global Health/Quality of Life |
Single Pre-Defined Value Selected |
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| C54690 | PROMIS - Global Health mental health rate scale | PROMISGlbHlthMntlHlthRtScl | Scale related to an individual's rating of his/her mental health, as part of the PROMIS Global Health | Scale related to an individual's rating of his/her mental health, as part of the PROMIS Global Health | In general, how would you rate your mental health, including your mood and your ability to think? | 1;2;3;4;5;1;2;3;4;5 | Poor;Fair;Good;Very Good;Excellent;Poor;Fair;Good;Very Good;Excellent | Numeric Values | Pediatric | Core | 1.00 | 2017-04-07 15:34:25.0 | PROMIS Pediatric Global Health 7+2 | Outcomes and End Points | Global Health/Quality of Life |
Single Pre-Defined Value Selected |
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| C60654 | PROMIS - Pediatric Global Health 7 plus 2 health scale | PROMISPedGlbHlth7Pl2HlthScl | Scale related to an individual's rating of his/her health, as part of the PROMIS Pediatric Global Health 7+2 questionnaire. | Scale related to an individual's rating of his/her health, as part of the PROMIS Pediatric Global Health 7+2 questionnaire. | In general, would you say your health is | 1;2;3;4;5;1;2;3;4;5 | Poor;Fair;Good;Very Good;Excellent;Poor;Fair;Good;Very Good;Excellent | Numeric Values | Pediatric | Core | 1.00 | 2017-04-07 15:34:25.0 | PROMIS Pediatric Global Health 7+2 | Outcomes and End Points | Global Health/Quality of Life |
Single Pre-Defined Value Selected |
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| C60655 | PROMIS Pediatric Global Health 7 plus 2 - very sad feel frequency scale | PROMISPGH7Pl2VySdFlFrqScl | Scale for the frequency with which the subject/participant feels very sad, as part of the PROMIS Pediatric Global Health 7+2 questionnaire. | Scale for the frequency with which the subject/participant feels very sad, as part of the PROMIS Pediatric Global Health 7+2 questionnaire. | How often do you feel really sad? | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values | Pediatric | Core | 1.00 | 2021-04-30 12:55:04.0 | PROMIS Pediatric Global Health 7+2 | Outcomes and End Points | Global Health/Quality of Life |
Single Pre-Defined Value Selected |
PROMIS | Pediatric Global Health 7+2 Questionnaire | PedGlobal2R1 | ||||||||||||||||||||||||||||
| C60656 | PROMIS Pediatric Global Health 7plus 2 - fun with friend frequency scale | PROMISPGH7Pl2FnWFrdFrqScl | Scale of the frequency with which the subject/participant has fun with friends, as part of the PROMIS Pediatric Global Health 7+2 questionnaire. | Scale of the frequency with which the subject/participant has fun with friends, as part of the PROMIS Pediatric Global Health 7+2 questionnaire. | How often do you have fun with friends? | 5;4;3;2;1 | Always;Often;Sometimes;Rarely;Never | Numeric Values | Pediatric | Core | 1.00 | 2021-04-30 13:00:50.0 | PROMIS Pediatric Global Health 7+2 | Outcomes and End Points | Global Health/Quality of Life |
Single Pre-Defined Value Selected |
PROMIS | Pediatric Global Health 7+2 Questionnaire | PedGlobal5R1 | ||||||||||||||||||||||||||||
| C60657 | PROMIS Pediatric Global Health 7 plus 2 - parent listen idea frequency scale | PROMISPGH7Pl2PrntLstnIdFrqScl | Scale of the frequency with which the subject/participant's parents listen to his or her ideas, as part of the PROMIS Pediatric Global Health 7+2 questionnaire. | Scale of the frequency with which the subject/participant's parents listen to his or her ideas, as part of the PROMIS Pediatric Global Health 7+2 questionnaire. | How often do your parents listen to your ideas? | 5;4;3;2;1 | Always;Often;Sometimes;Rarely;Never | Numeric Values | Pediatric | Core | 1.00 | 2021-04-30 13:03:40.0 | PROMIS Pediatric Global Health 7+2 | Outcomes and End Points | Global Health/Quality of Life |
Single Pre-Defined Value Selected |
PROMS | Pediatric Global Health 7+2 Questionnaire | PedGlobal6R1 | ||||||||||||||||||||||||||||
| C60658 | PROMIS Pediatric Global Health 7 Plus 2 - tire easily past 7 day frequency scale | PROMISPGH7Pl2TrEsPs7DyFqScl | Scale of the frequency in the past 7 days with which the subject/participant got tired easily, as part of the PROMIS Pediatric Global Health 7+2 questionnaire. | Scale of the frequency in the past 7 days with which the subject/participant got tired easily, as part of the PROMIS Pediatric Global Health 7+2 questionnaire. | In the past 7 days I got tired easily | 1;2;3;4;5 | Never;Almost Never;Sometimes;Often;Almost always | Numeric Values | Pediatric | Core | 1.00 | 2021-04-30 13:06:33.0 | PROMIS Pediatric Global Health 7+2 | Outcomes and End Points | Global Health/Quality of Life |
Single Pre-Defined Value Selected |
PROMIS | Pediatric Global Health 7+2 Questionnaire | 2876R1r |
9 results.